Started in 2015, The Starfolio is a resource guide for newly diagnosed families that provides key information and tools needed during this difficult time.
Our goal for 2019 is to update the Starfolio with even more valuable information for families.
Your donations will help us to fund this upgrade and provide 500 Starfolios to families in need.Donate Now
We’ve committed $100,000 to a clinical trial for a new treatment option for low grade gliomas. Current treatment strategies using radiation or chemotherapy are often curative but with enormous costs to the childs’ development and long-term function. While other trials leverage the discovery of the mutations that are the cause for approximately 90% of these tumors and use drugs that target these mutations, they are meeting with mixed success, partly due to the incomplete suppression of the mutation and the poor penetration of the currently available drugs into the brain. The TAK580 trial overcomes both of these issues with the identification of a new class of drug that attack almost all of the different types of mutations causing pediatric brain tumors.
*More than 28,000 children (0-19 years of age) are estimated to be living with a brain tumor in the US
*An estimated 3,720 new cases of childhood (0 – 14) primary malignant and nonmalignant brain and CNS tumors are expected to be diagnosed in 2019
*Brain and CNS tumors are the most prevalent form of pediatric cancer in kids under 19
*Pediatric brain tumors are the leading cause of cancer-related death among children and adolescents ages 0-19.
The Children’s Brain Tumor Tissue Consortium (CBTTC) is an exceptional collaboration between ten research institutions that collects, stores and analyzes tumor specimens. It shares this data so all researchers can benefit from the collective knowledge. You may have heard of “big data” initiatives such as the “cancer moonshot” recently. The CBTTC has been committed to this concept for years now, and Thea’s Star of Hope is proud to have supported the CBTTC’s mission since 2011. For 2019, we are committed to funding $30,000 towards additional research.
Help us reach our goalDonate Now