Resources

Have you been thinking about something that can help kids with brain tumors or their families? Let us know.

These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or approval by Thea’s Star of Hope. Thea’s Star of Hope is not responsible for accuracy, legality or content of these links. Contact the external sites directly to answer any questions related to their content.

Support Sources 

Camp Sunshine
A retreat for children with life threatening illnesses, and their families.

CaringBridge
A free way to create a website where you can share updates, photos, and videos, with family and friends. They can also leave messages and words of encouragement.

SuperSibs
SuperSibs, a program of Alex’s Lemonade Stand Foundation, is dedicated to comforting, encouraging, and empowering siblings during their family’s battle against childhood cancer.

Make a Wish America
Make a Wish America grants wishes for children with life threatening illnesses.

Children's Brain Tumor Foundation

The Children's Brain Tumor Foundation is a non-profit organization founded in 1988 by dedicated parents, physicians and friends. Their mission is: to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

Pediatric Brain Tumor FoundationThe Pediatric Brain Tumor Foundation is the world's largest nonprofit funder of childhood brain tumor research.  Their programs include free educational information about brain tumors, college scholarships, Ride for Kids motorcycle charity events and Starry Night walk/runs.

A Kids' Brain Tumor Cure Foundation|The Pediatric Low Grade Glioma Foundation

The PLGA Foundation is dedicated to finding more effective, less toxic and less punishing treatments for eradicating low grade glioma brain cancer in children.

Sidekicks Respite Care

Sidekicks provides a high quality and engaging respite care experience to your loved one with intellectual or developmental disabilities.

 

Information Resources

Search Results of: Pediatric Low Grade Glioma | ClinicalTrials.gov
Comprehensive list of clinical trials for pediatric low grade gliomas

Brain Tumors | Boston Children's Hospital
Information from Boston Children’s Hospital regarding brain tumors in children, treatment options and research.

Pediatric Brain Tumors | The Children's Hospital of Philadelphia
Children’s Hospital of Philadelphia’s Neur-Oncology Program

Pediatric Brain Tumor Consortium
The Pediatric Brain Tumor Consortium (PBTC) is a multidisciplinary cooperative research organization devoted to the study of correlative tumor biology and new therapies for primary CNS tumors of childhood.

Cancer Resources | OncoLink
OncoLink is the website of the University of Pennsylvania Cancer Center that provides resources for cancer patients and caregivers.

Message Boards

Children's Tumor Foundation Forums
Children’s Tumor Foundation Discussion Groups

Facebook Groups

CBTF Parents
Children’s Brain Tumor Foundation group for parents of children with brain tumors.

Pediatric Low Grade Glioma
PLGA Foundations group for Caregivers

CHOP Families Helping Families
Parent formed group of parents whose children receive treatment at Children’s Hospital of Philadelphia for various medical issues.

Kyle’s Peace Support Group
Support Group for parents of children with brain tumors.

Yahoo

Low Grade Glioma Kids | Yahoo Groups
This is a support group for parents of children with low grade gliomas of any type - juvenile pilocytic astrocytoma (JPA), pilomxyoic astrocytoma (PMA), pleomorphic xanthoastrocytoma (PXA), fibrillary astrocytoma, oligodendroglioma or ganglioglioma. All locations are welcome including brainstem, cerebellar, thalamic, hypothalamic, cerebral, tectal plate and optic pathway. Those with multifocal or disseminated low grade gliomas are also welcome.

Optic Glioma Patients, Family, Doctors | Yahoo Groups
Support for families and medical professionals that deal with a type of brain tumor called optic gliomas.

Pediatric Brain Tumors | Yahoo Groups
This list is for the discussion of all pediatric brain tumors, primarily by parents and immediate family.

Educating Brain Tumor Kids | Yahoo Groups
The purpose of this site is to create a unique education resource center for teachers, schools, parents, and social workers on the subject of educating children with Brain Tumors (medulloblastoma, astrocytoma, ependymoma, brain stem glioma, etc.).