Plans for 2017

Who We Plan to Support in 2017

2017 Research Goals

Clinical Trial

Pacific Pediatric Neuro-Oncology (PNOC) “Precision Medicine” approach to Pediatric Low-Grade Gliomas

We’ve committed $30,000 to a clinical trial that adopts a “Precision Medicine” approach to Pediatric Low-Grade Gliomas (the most common brain tumors in children, including Thea). This trial maps tumor genomes to help determine which treatments will be most effective for these children. It costs about $3,500 to map one tumor, and doing so not only helps the children enrolled, but contributes to our overall understanding of which genetic issues cause tumors. It builds upon fusion gene research we’ve sponsored in the past, and is a “clinical” extension of the work done by the Children’s Brain Tumor Tissue Consortium (CBTTC).

Pediatric Brain Tumor Research

Continued support of the Children’s Brain Tumor Tissue Consortium (CBTTC)

The Children’s Brain Tumor Tissue Consortium (CBTTC) is an exceptional collaboration between ten research institutions that collects, stores and analyzes tumor specimens. It shares this data so all researchers can benefit from the collective knowledge. You may have heard of “big data” initiatives such as the “cancer moonshot” recently. The CBTTC has been committed to this concept for years now, and Thea’s Star of Hope is proud to have supported the CBTTC’s mission since 2011. For 2017, we are targeting our biggest contribution to date ($50,000) but there is no way we can get there without your help.

2017 Family Support We Plan to Provide

Star Portfolio Expansion $10,000 In 2015, we partnered with the Pediatric Brain Tumor Foundation (the world’s largest pediatric brain tumor organization) to launch “The Star Portfolio.” This resource guide provides tools and key information to recently diagnosed families. We wish it was available when Thea was diagnosed. Portfolios have been provided to hundreds of families, and now it’s time for a “reprint.” The goal is to not only create 500 additional portfolios, but to update the content with even more valuable resources for newly diagnosed families.