15 months ago, Justin Wire had taken a spill on his skateboard while riding at his favorite skatepark. In the days following, he started vomiting and complaining of a headache. He was taken to a local emergency room with what were thought to be concussion symptoms. A CAT scan soon revealed a severe case of hydrocephalus. Justin was then airlifted to Children’s Hospital of Philadelphia where he underwent emergency brain surgery to relieve the pressure in his brain and was then diagnosed with an inoperable brain stem glioma (tumor).
In the subsequent months, Justin was also diagnosed with a syrinx (fluid filled sac) in his spinal cord which caused him pain when simply running or exerting himself. The syrinx was a direct result of his severe hydrocephalus. Shortly after that diagnosis, Justin was then diagnosed with Epilepsy. He now takes 8 pills daily to control his seizures.
Just this summer, Justin had another brain surgery revision to relieve the pressure in his brain again. 10 days later he ended up in the emergency room with complications from surgery. He had another emergency surgery the following morning.
Justin’s tumor, syrinx, and hydrocephalus are all monitored closely by interval MRI’s. When he’s not busy being an advocate for Pediatric Brain Tumor awareness, he can be found at the local skateparks riding his BMX bike or skateboarding and trying to be as normal of a 9 year old boy as he can be.